Good Morning My Love –
Almost blew today off too. One rough bout and I went back to bed, but roused myself at last, and though I was a half-hour late, at least I’m here at ECS. Yesterday’s absence was at least semi-legit; today just would’ve been a cop-out.
Called Home Instead. Pamela, newly in charge of staff, says they’ve got some people lined up, one in particular, who could take over. Anticipating that, I agreed to a four hour gig (11-3) on Saturdays, a lady in her 60s north of here, who likes the Sox, likes crosswords, likes brunch and is “quirky” — no explanation given. I should start March 12. Hope very much it works out better than Mr. P.
3-1-06
Good Morning My Love –
Dead tired today, not much sleep; things are pending (my release from Mr. P, my new client, snow coming tomorrow, PT waiting in the wings plus, maybe, the writing course) which, as you know better than anyone, makes me edgy. Battling depression. Not even playing poker well the last couple of days.
The light caught the skin on my forearm just right (or just wrong) and I saw the tell-tale fine webbing of old person’s skin. Finally my arms match yours, though the skin on your face never was anything less than young, smooth and soft. I’m old, baby. We had wanted to be old together; like the couple in thbe Hawthorne story, “The Miraculous Pitcher,” that I read you long ago, we wanted to die entwined. Because of the MS, your body went through stages at 45 that should’ve waited till your 70s, like decline in mobility, so I can fairly say I was with you as your body prematurely aged; but I also wanted to be with you as mine aged too;. Not to be, not to be. Will I be old alone?
The Mr. P Shuffle wasn’t too bad. The damned place gets me down, that’s all. From the smells, to the residents and their desperation that either silences them or makes them rant, to the “fire drill” which consists of corridor and residents’ doors being closed for five minutes, to the 90-minute-plus “breaks” by the aides. And Jane told Mr. P that the place had been sold. Can it get worse? Sure. And probably will. There are many beds unoccupied, especially on the first floor. Fill ‘em up, don’t hire in proportion, and you have more income without corresponding expense increase. Let ‘em sit in their waste for an hour or two more. Who cares?
You were right, baby: suicide is better than having to be in a nursing home.
Mr. P, as a private payer, is not as vulnerable as most of his fellow inmates. He can leave if he wants to, which I reminded him of last night. Or, for him, it might actually get better. The daughter, who’s way too passive, has been trying to get Mr. P’s dialysis done at the Don Orione, saving him $3K a week on ambulance fees (yes, $1k per round trip from nursing home to dialysis center. God!); the Home was willing, but somehow the necessary paperwork is still being processed. Delayed by the sale? Perhaps. And perhaps the new owner (if any — this sale is still in my mind a rumor) will see a chance to charge a fee for designating an unused area as a “treatment zone” (or some such) and push the process.
As for me and Mr. P, he keeps wanting me to add hours and days. I tell him he has to go through Home Instead, but that I can’t add on. Why? he asks. I have my own life outside of here, I say. I don’t, he replies. I have much sympathy for him, but Mr. P doesn’t have any for me, or his daughter, or Jane. He feels that since Fate did all this to him, he’s owed. Our lives, needs don’t matter. And now that he’s had a taste of having someone there to wait on him hand and foot, he wants more. Again, I don’t blame him; I just can’t be that someone any more, whether he likes it or not.
Somehow it’s appropriate that, at the bottom of the hill Don Orione tops, is a casket company.
3-2-06
Good Morning Beloved –
Yesterday mailed in my tax returns. I think it’s the earliest I’ve ever done it. Incentive great when you’re due a four-figure refund.
Good night at poker last night. In three hours of playing I won 60K in chips. Very little skill on my part, just kept getting great hands. I did know what to do with ‘em when I got ‘em, though….
Didn’t really get caught up on sleep, but rested well. Still tired but not blotto; sad but not miserable. I miss your smile. I miss the short little shuffling steps you’d take as you padded through the apartment; I’d be lying in bed and hear you coming, wait to see your face peek around the door jamb, sometimes with your wonderful little girl’s look of curiosity, anticipation and, perhaps, a bit of mischief, to see how I was doing. Of course, if I was dozing you’d most likely say, “Are you asleep?” in your stage whisper, wake me up and piss me off. But I’d give a great deal to see you peek at me once again.
Kept hearing that little shuffle in my mind last night.
We understood how much pain was involved in living with your illnesses; I chose to endure it. Why? Because of the joy that you brought along with it. Great joy, my love. Your capacity to love overcame all pain.
Finished the Lincoln biography. Complex, fascinating man. Strongest impression I got was that he had a towering sense of duty; once he understood and accepted a duty he would fulfill it no matter what. Consequently he spent much of his political life not seeking positions he felt he could not fill well, or that another could fill better; but, having decided he could do a better job, he was a determined campaigner.
It’s very interesting to see him balance the demands of principle and the need for expediency in performing his presidential duties. He always worked upwards from principle, trying to use that as a basis for a decision. But he became politically very astute, particularly about judging the public mood and timing his moves accordingly. Always there’s a mix of political practicality and personal ethics in how he goes about his business; he understood that a good idea that no one will accept is a bad idea.
His handling of the slave issue shows this mix. He found slavery personally offensive, and opposed it on principle. But he also knew that to impose emancipation on the antebellum South was almost impossible to do without damaging both the economy of the South and the union itself. So he favored gradual, compensated emancipation — until the South seceded. Then the preservation of the union became his prime duty.
Even so, he was reluctant to emancipate, partly because, early on, the war might’ve ended in negotiation rather than conquest, and a proclamation like the one he eventually made would’ve made negotiating impossible. Then, when the war deepened and conquest would be the only way to win, he held off while the North was suffering defeat, fearing a gloomy, jittery, pessimistic public might not accept the proclamation; thus, though the proclamation had been written months before, he waited until the North had won a victory to announce it. But, then, why not wait –if the North was now winning battles — to the war’s victorious end, and then impose emancipation? Because the victory was by no means guaranteed, and the North needed more troops to guarantee it — black troops, comprised of freed slaves. By the war’s end, blacks amounted to about half of the union’s troops; as Lincoln said, he didn’t free the blacks; they freed themselves when they took up arms for the union.
Thus Lincoln followed his principles (but much later than radical abolitionists would’ve liked) but did so in a way at a time best suited to help preserve the union — Lincoln’s prime duty.
I find that all great presidents have this mix of principle tempered by preacticality tempered by principle. FDA a good example. Real conviction steered in part by a calculating sense of image, of political dynamics. Thus, for instance, Lincoln’s homespun, simple man of the earth personna was part genuine, part cultivated. He knew how to create effect; he also, when he felt the need was great, was willing to do himself political damage to say what needed to be said. Even then, you can sense him thinking in terms of short-term and long-term results; one of his strengths was his ability to anticipate how things might evolve in several years and shape his policies accordingly. A very patient man.
And he was willing to accept a man’s shortcomings if his strengths served Lincoln’s purposes. Often he gave men too much leeway, especially early on, but more often he kept good but flawed men loyal and productive, and didn’t let his own ego exacerbate such flaws, which usually involved ambition and jealousy. He recognized and respected talent, and tried to reward it.
Another interesting aspect of Lincoln was his “religiousness.” Early on it’s hard to call him a Christian, since he was skeptical about Jesus’ divinity, but might be termed a deist, though he didn’t talk about it much and didn’t refer to God profusely in his speeches, as most did. But as the war deepened and the slaughter worsened, he read the Bible more. To preside over an enterprise so bloody, where the dead were often more fortunate than the wounded (amputation was the most common operation), weighed on him greatly, and the Bible apparently told him that he was doing God’s purpose, and such thoughts colored his speeches in the last year of his life.
I’d like to read a book that shows Lincoln day to day, especially in conversation. He had a knack for the apt phrase, though he tended to be self-deprecating and ironic. After the Gettysburg Address he was heard to say, “well, that fell on them like a wet blanket!” And, late in his life when he had some kind of flu but felt he still had to attend to his duties, even to onorous ones like receiving th daily flood of people who wanted something from him, “At least now I can give something to everyone.” Yet there are no reports of his being unkind, rude or imperious to anyone who came before him.
Am also nearing the end of Marco Polo. It’s not a great read, but if you’re interested in a picture of the temporate (as in zone) world in the 1300s, it holds you. What fascinates me is how extensively all these lands knew of and traded with each other. While northern Europe was still afraid to step outside its castle walls, and learned almost nothing beyond church dogma, the rest of the world had extensive interactions, and an intellectual life that was far-reaching, tolerant and sophisticated. Again underscores the parochial quality of the European world view.
Strangely enough, the person from our past I’m most comfortable with is B. She calls maybe twice a week, chats briefly, gets off. Easy. J. never calls because of her el cheapo calling plan, and besides, she lives a busy self-contained life that I’m outside of (I’m not complaining), so my existence in her mind is a bit fuzzy. So every so often I check in. I believe her when she says she misses you terribly; it’s OK that she doesn’t miss me. I don’t particularly miss her either, no negativity implied. And I’ll always be grateful for the grand she laid on me.
Linda and I talked a few days ago. Same old, same old, which is as good as can be hoped. Her ex died, don’t know if I told you. Heart. She didn’t seem too broken up. Tiff and granddaughter OK.
Still haven’t heard from Debbie and Stevie. And there’s been no follow-up re: meeting with June. I think D.’s son’s problems have driven that project from D.’s mind. Haven’t heard from the M.s since Christmas. I don’t mind, but somehow I think you’d want me to stay in some kind of contact, so I guess I will come Spring. N. emails every so often. Judy sent those pics. John and Freddie you know about. Anyone else?
As I’ve told you before, you were the one who held this group together; love and regard for you was its common denominator. Wit you gone, the group’s center is gone and I can’t be a new center. Hell, I’m just one of the group. So we all float slowly apart, some more than others, because you are here no more. Again I realize that, though the scale was small, your power, the force and quality of your personality, was very great. Baby, we all love you. And we will never forget you or your courage, none of us. In ten, twenty years, one of us will think of you, hear your name, and a psychic sound like the ringing of a fine bell will fill our minds, and we’ll remember again how very special you were.
L.
3-3-06
Good Morning My Best Baby –
Wish you were here.
My deliverance from Mr. P took a step back yesterday. The “replacement” proved to have a track record of late and missed appointments and dificient verbal skills (he’a a mute?) so he wasn’t hired. Two other newbies have been interviewed; hope to hell one of ‘em works out.
In the meanwhile the Home Instead coordinator who set me up with my next client, the Sunday lady, screwed up; it’s a Saturday gig and I can’t do it if I’m still stuck with Mr. P. I’m definitely bummed. Going into the Don Orione feels like some sort of sentence — and I can leave the place! Of course, I see it at its worst, nights and weekends. Don’t get to see the bright young 9 to 5ers who act like new paint on rotted wood, a cosmetic cover-up until you look closely. By the time I show up, the place is in the hands of the keepers.
Mr. P not too bad, and bit brusquer than usual. Had some kind of fight with his daughter, who was storming out as I was walking in. Actually glad she lets him know that he can go too far. He needs reminding, so self-involved is he.
The snow missed us, went south. Tsk.
After work I see F.E. for an ounce. I’m smoking a quarter ounce a week, like clockwork. Can’t say the Mr. P Shuffle is reducing my consumption by more than a pittance. At least the Shuffle is subsidizing the habit, so I don’t eat into my savings.
Will have to pay the car’s excise tax this year. Am not going to try to fake it. If they found out I’d have to somehow gain title – not easy without processing your will – and then reinsure and reregister. I’d also probably lose your handicapped plaque. So coughing up $46 a year is the lesser of evils. When I finally have to get rid of the car, don’t know what I’ll do then. Hope that’s years away.
I’m getting a bit edgy about writing you. First, I feel like I had a creative spurt which produced some decent writing, and that the spurt is spent and my writing’s more pedestrian, duller.
Much more importantly, I’m worried I’ll run out of things, other than my day-to-day, which would make this a mere journal rather than a protracted love letter. The day-to-day has its place and I know you’re at least slightly interested….
…But in how many ways can I describe our love? I don’t want to repeat myself, and fear I have, many times. There are still memories to explore and analyze, but they’re two-edged swords, to say the least, A bad memory — and that’s the kind which keep showing up, such as your last day, a scene I can’t get out of my head just now — hurts like hell. Right now I’m crying as I’m writing; that’s the way it is almost every time.
Even a good memory is bittersweet. I saw in the paper that the Butterfly Place had moved from Tyngsboro to Westford, and I was glad we went, glad you saw it. Remembered your absolute delight as the butterflies fluttered around you, landed on you. And I wished, wished so hard, that I could take you there again, right now, to witness and share your joy.
It was your joy which brought me joy.
But how many times can I say this? How many times, how many ways can I say I miss you, can I try to describe the feeling of having lost a limb, an organ, a vital part, something irreplaceable? How long before the grief stops being understandable and becomes pathetic and self-indulgent? Perhaps it already is.
Tony’s right — I’m going to need something positive. Can’t just exist. Something that makes me want to engage the future, not just reach for the kleenex.
If I find it, can I please, please talk to you about it?
I’d sure love to sing to you again. Some old sweet rock-n-roll, a cheesy sweet ballad. “I Love You For Sentimental Reasons,” Sam Cooke version, repeating “I love you,” as I did, and you back at me, the day before you died.
3-4-06
Good Afternoon Beloved –
Have a touch of IBS, which has kept me in the house all morning. Need to do the Mr. P Shuffle in an hour or so.
Couldn’t shake the sadness yesterday. So I’m trying not to think sad thoughts or conjure up sad memories. Give myself a break. Need to limit my negative emotions until my shuffling can be shuffled off onto someone else.
Tom wrote. It’s occured to him after 20 years that his money-making schemes haven’t rewarded the effort he put into them. And of course money’s tight. Told him the only way I ever got money was to hire myself out; suggested he consider a part-time job. Doubt if he’ll do it, but based on his projects’ track records, he should. Otherwise he seems OK.
Back from the Mr. P Shuffle. Going there is like visiting you in the hospital (with the crucial difference that when I get there it’s grumpy Mr. P, not my wonderful Beloved). It takes a conscious effort to walk in the building. I know I’m entering a world of sickness, disability, despair. A world where, upon admission, you forfeit your independence, you sacrifice your viability as an individual. Remember? “We are in the hands of our enemies.” We’d say that whenever you had to go in the hospital. That was harsh; they aren’t enemies; some became friends, but the point was still valid: pre-admission you are in charge of your own life. After admission you are not. You surrender control. They don’t even see you in the hospital bed as they do when you’re out of it. In it, you’re a patient, not a person, and you have to do things their way, by their schedule, at their convenience. That’s why you needed me there to remind them, forcefully if necessary, that you were still a person.
Mr. P has the same issues as you: control, repect. And my mission with him is much the same. Main difference is that he undermines himself by his behaviors. You weren’t above doing that too on occasion, but you could be reasoned with, and Mr. P cannot. Plus you were much more attractive.
Once in the room — yours, his — my stance is much the same. I’m there to do what I can, for you, for him. My personal preferences are irrelevant. Whatever you need, wherever you’d like to go, to complain about or deal with, that’s my job. It was easier with you because a)you were more cooperative; b) you made much better conversation, so six hours with you were easier than three hours waiting for Mr. P to say something; c)I love you. I can barely manage to like Mr. P.
So it is like visiting you — with all the worst parts intact (except that when you suffered, I suffered, which ain’t the case with Mr. P), and almost none of the best.
3-5-06
Good Afternoon My Love –
Have tried to reach Freddie, but I can’t. No answer, no return call either from his home or cell phones. So of course I’m thinking he’s in the hospital. Was possibly going to see him and Linda, but am staying put.
Also can’t reach Sindy. Her cell phone, which last week had a typically diabetes-inducing treacly message from Sunshine Sindy, now has a “enter the ten digit mailbox number.” Left a message on her home phone. Worried about her too; we know from the floods that ruined our place in H.P. how bad mold can be.
Walked. It’s a cool but pleasant day with the promise of Spring temps a few days away. I felt well enough to extend the walk by a mile or so, without (thus far) ill effects. Don’t worry; there’s still enough wrong with the legs to warrant PT. I just don’t want to schedule till I’m done with Mr. P.
3-6-06
Good Morning Beloved –
As you know, a sign I’m depressed is, I don’t shower. I wash from crotch to face almost daily, but below the crotch I get dirty, and my hair gets worse. Finally, this morning, I showered and washed my hair.
A bit of a struggle to get going today. By now, any crampy BM makes me think about blowing off work, but I’m trying to be good.
I also did a little web-site checking on writing courses. The only two I could find conflict with the Mr. P shuffle. Of course.
I may have been able to walk more yestrerday, but I’m a damn sight stiffer today. Much muscular complaining. One thing I don’t do on my walks any more (sadly) is pick up trinkets and jewelry for you. Don’t know if I ever found anything you could actually wear, but you kept everything I brought you, feeling I imagine a bit like the person whose cat keeps bringing home dead mice as a present.
I see the stuff on the ground still. Look at it. Leave it there. No one who’d want it, no one to bring it home to.
There is something out there I’m sure you’d want, if I happened across it by a dumpster or something: from deBeers, the world’s snazziest egg timer, in a large stylized clear hourglass-shaped container holding thick clear liquid, and a multitude of rhomboidal diamonds. Turn upside down and watch the diamonds sink slowly through the bottleneck to the bottom — want one? Our 28th anniversary is in less than a month….
Actually, I think this year will be the last year I refer — externally — to our anniversary. Can’t keep on saying “It would’ve been our ____…” I’ll say it in my own head, “celebrate” it in my own way. No, the active anniversary now is Sept. 20. In two weeks that will mark six months — half a year — since you died. Inconceivable. Chokes me up just to write it. Gone that long. Still infused with you in my heart and memory. You permeate me, like a delicious flavor — but one I can’t get any more. But I’ll savor that flavor forever.